Resources on the Net.
A Deafblindness Web Resource, by Hugh Sasse, This is one
of the most comprehensive sites their is on the net about Deafblindness,
you will not find any site on the net to rival this one, An excellent site
and well worth visiting. Hugh Sasse's web site is closing down very soon,
and it has been moved
this will be the new home for the, A Deafblindness Web Resource. I have
been ask to take it over.
Alabama Institute for Deaf
& Blind (AIDB), We are located in Helen Keller's home state, and
offer one of the most comprehensive education and service networks for
deaf, blind and deaf/blind people in the world. Alabama's most famous citizen,
Helen Keller, overcame a dual challenge of deafness and blindness through
the strength of her spirit and the skills of her devoted teacher, Annie
Sullivan. At Alabama Institute for Deaf and Blind, we have long recognized
the very special requirements of children who are both deaf and blind.
Association of the Deaf-Blind, (AADB) is a national consumer advocacy
organization for people who have combined hearing and vision impairments.
AADB is open to all persons who are deaf-blind and individuals directly
concerned with their well being, including spouses, children, friends,
and health care professionals.
Coastline Special Services ( Programs for the Deaf-blind Deaf Blind),
If you have a vision impairment that makes it difficult to obtain a college
degree, there is a solution. For the blind, the deaf-blind, the deaf, and
others with disabilities, going to college is often a laborious, time-consuming
process. There really isn't that much in the way of funding and services.
American Coastline is an electronic university. Legally confering degrees
but unaccredited the university offers electronic E-Mail mail and regular
mail programs. Some credits can be earned by evaluating life experiences
that can be equated to college level learning, transfer of credits from
other schools or completing a program of studies.
Ministry Links, Deaf, Deaf/Blind, and Hard of Hearing. A List of Apostolic
church with a Deaf Ministry This is a effort to meet the need of helping
people easily locate churches and friends who can communicate with us.
A very nice site for those of us who attend church. I believe the idea
is that they can find a guide/communicator for us who wish to attend
an Apostolic church.
Project, This is a federally funded FREE resource for professionals
working with, families of, and for individuals with deafblindness (also
known as dual sensory impairment, DSI). The purpose of the Deafblind project
is to identify children with combined vision and hearing losses. The age
range of the individuals that they can provide services for are from birth
to the age of twenty two. They also provide training, technical assistance,
and resources to families and service providers of individuals with deafblindness.
The Deafblind Project is housed at the Arizona Schools for the Deaf and
the Blind as a component of Arizona’s Early Childhood Education and Technical
Assistance to Schools.
This is the Text-only
version of The Arizona Deafblind Project site.
State School for the Deaf and the Blind, Arizona State Schools for
the Deaf and the Blind is a non-profit state agency which specializes in
the education of children and youth with hearing or vision loss throughout
Arizona. Through strong partnerships with families, school districts, and
communities, ASDB enables children and youth with hearing and vision loss
to succeed now and in the future.
This is a Vocational training and development centre, operates in Espoo,
they offer vocational rehabilitation and training for visually impaired
and Deafblind people. In addition they offer very specialist services they
are the only specialist centre in Finland in this field and are government
owned. Some very good information here and one that must be visited.
Mr Anindya "Bapin"
Bhattacharyya's Home Page, This is an interesting and remarkable page
by Bapin, he gives a great insight and detailed information about how computers
has opened many doors for Deafblind people. I totally agree with him here.
Bapin also has his Resume on his site as he is about to graduate shortly.
So why not visit his pages and you will find an ambitious and potential
employee? This is an excellent site.
for Deaf-Blind Persons - Israel, The Deaf-Blind population may benefit
partially from services offered by the organizations for the Deaf and Hard-of-Hearing
and by services for the Blind and visually impaired in Israel. However
there is a lack of rehabilitation and social services, which need to be
tailored specifically to the needs of this population.
Self-Determination, does many different things on disability issues.
They have two current projects and one that will start in the fall that
are specifically concerned with deaf-blind children.
Services for Children with Deaf-Blindness, The Colorado Services to
Children with Deafblindness is a project funded through a grant from the
United States Department of Education. The major objective of the
project is to assist programs, professionals, and parents in providing
appropriate learning and living opportunities for individuals with deafblindness
between the ages of birth to 21. The mission of the grant project is to
provide technical assistance, inservice training, assistance in identification,
program consultation, workshops, lending library access, and newsletters
to families, educators, and others involved with individuals with deafblindness.
These services are provided at no cost to families and service providers
of children who are deafblind (having both vision and hearing impairment).
INTERACTIONS: IT TAKES TWO, This fact sheet was adapted from one originally
written by Kathleen Stremel and published and distributed within the state
of Mississippi by the Mississippi Statewide Project for Individuals who
are Deaf and Blind. This document makes very interesting reading and I
would advise any social worker for Deafblind people, or specialist who
works in this field to read it. I found it very interesting myself and
I think you will as well.
Rubella Syndrome, by Susan Reef, MD and Victor Coronado, MD Rubella
is a viral illness caused by a togavirus of the genus Rubivirus. Children
usually develop few or no constitutional symptoms, but adults may experience
a 1-5 day prodrome of low-grade fever, headache, malaise, mild coryza,
and conjunctivitis. Arthralgia or arthritis may occur in up to 70% of adult
women with rubella. When rubella infection occurs during pregnancy, especially
during the first trimester, fetal infection is likely and often causes
congenital rubella syndrome (CRS), resulting in abortions, miscarriages,
stillbirths, and severe birth defects. Up to 20% of the infants born to
mothers infected during the first half of pregnancy have CRS. The most
common congenital defects are cataracts, heart disease, sensorineural deafness,
and mental retardation.
Beyond Sight and Sound, This is a project designed to meet the unique
needs of children and youths with both vision and hearing impairments.
Connections is a partnership between the Maryland State department of education
and the University of Maryland, USA. This project supports children in
the environments where they live and go to school by providing resources,
training and technical assistance.
in IEP Development for Children Who Are Deafblind, The IEP (Individualized
Education Plan) is a written plan that tells what special education program
and services the child will receive. The IEP is written at a conference
by a team which includes the child's parents. An IEP must include all the
programs and services necessary to meet the child's individual needs as
identified during the evaluation or re-evaluation process.
Association, Workbook and Video "You just keep on learning" A training
video for Residential Care Workers The video shows the specific tasks of
the Residential Care Worker and describes the different ways of learning
the necessary skills to perform these tasks competently. The workbook helps
to check skills and experience in each of the seven areas of competence,
work out individual learning needs and plan ways to meet those needs.
Association - Victoria The Association was formed in Victoria in 1967
as a self-help group by families with children with a deafblind disability.
The major reason for its establishment was the lack of services for people
with a multi-sensory impairment. The first professional staff member was
appointed in the mid-1970's. The basic objectives of the Association are
to represent the interests of people with a multi-sensory impairment, to
provide community support for them and their families, to provide short
term care and long term accommodation and respite care, to educate the
public about multi-sensory impairment, to support the rubella immunization
campaign, to be an information resource about deafblindness and to be a
catalyst for the provision of services to the group of people it represents.
International DbI, DbI is the world association promoting services
for deafblind people. As deafblindness is a low incidence disability the
extent of activity in any one country will not be enough to maintain a
distinct identity for this field. International networking and the sharing
of information is essential to the development of the deafblind field and
quality services for deafblind people. To learn from good practice we need
to collaborate across national boundaries.
Services Minnesota, (DBSM) - Children's Discovery Project, The goal
of the Children's Discovery Project is to develop the community integration
skills of Deafblind children.
Children Home page, Shelley Mackie has set up a remarkable page that
in time will become an excellent resource for parents of deafblind children.
Shelleys goals for this page are, 1. Make a place for parents to gain information.
2. Make a place for parents to talk with other parents who face the same
unique challenges. Shelley has also started a mailing list as well. This
information can be found on the site or in my mailing lists for DB people
Section. Shelley is the proud parent of a Deafblind child and his name
is Cameron. so Shelley certainly knows what she is talking about. An excellent
site and well worth visiting.
Deaf-Blind and Determined,
For a child like Helen Keller--deaf-blind, as it is properly referred--Colleen
has made great strides in her three short years. That's due largely to
her own hard work, says one of her teachers, Lucy Lotito. And to the hard
work of her "incredible" family who has doggedly scraped for answers and
approaches to the rare condition. This is a very nice page, I think you
will like it.
Centre, Inc. is a home-center that will provide a wide array of psycho-social
and educational services to children and their families. This is a great
site. Its little bit graphical but I really enjoyed it very much. There
was a little message on there first page that I would like you to read.
I found it very touching myself and I know that you will too. "Lying in
my crib I am alone, no sounds comfort my crying, no colours light up my
room, terror presides for a short time, as I am picked up and carried,
by someone I have never seen. I am deaf and blind."
Development Centre of the Palm Beaches Inc., In southern Florida a
determined grandmother has been striving for more than eighty years, refusing
to give up despite numerous disappointments and setbacks, to establish
a residential learning centre for the Deafblind children living in Palm
Beach County, USA. This is an agency which will provide a wide array of
psycho-social and educational services to children and their families.
The Centre will co-ordinate and advocate the highest quality services from
existing community resources. A very interesting site and well worth visiting.
Rises To Unique Challenges, by Christy Cummings-Reid. If I were asked
to give one word describing my feelings about being a deaf-blind mom, wonderful
leaps to mind. Yes, it's WONDERFUL being a mom and being a deaf-blind mom.
Every mom shares a special joy and love for her child, a deaf-blind mom
is no different. This is a very nice web page and i think you will enjoy
reading about Joseph and his Mother.
DeafBlind New Zealand
Incorporated, DeafBlind New Zealand arose from the need seen in the
New Zealand Foundation for the Blind, for a separate Society run by DeafBlind
Information Clearinghouse On Children Who Are Deaf-Blind (DB-LINK) is a
federally funded information clearinghouse focused on identifying, coordinating,
and disseminating information related to children (0 - 21) who are deaf-blind.
DB-LINK provides free individualized information and referral services
across many topics including effective early intervention, special education
and general education practices, medical, health, social, recreational
services, legal issues, employment and independent living, postsecondary
educational services, and information on the nature of deaf-blindness.
In addition, each year fact sheets are developed on select topics. These
too are available at no cost. This is one of the very best deafblind sites
on the net. An excellent resource for information,
official WWW archives of the Deafblind Mailing List, by Randy Klumph.
This is the archive of the only Deafblind mailing list, their are plenty
of great articles here and email letters from all the members. Randy does
some great work here by managing to keep this site in order.
Scotland, is one of Britain's biggest organizations for Deafblindness,
the site has informative information pages about Deafblindness, Blindness,
Deafness, Usher syndrome, partial sight and failing sight. Their is also
information about how to communicate with a Deafblind person, and the Guide/Communicator
service which they provide for Deafblind people in Scotland, information
about the organization itself its members and the people who help the organization.
they also arrange meetings for professional organizations on how to communicate
with a Deafblind person in hospital or anywhere else a Deafblind person
would find themselves in. As you may have guessed I think this is
a very interesting and informative web site, and one that must be visited
by people who have any interest in the well-being of Deafblind people anywhere
in the world.
Deafblind UK, This
is the Headquarters of Deafblind UK for the United Kingdom, The site has
some interesting articles about technology, and a lot more, This
is another excellent resource.
Offers specialized services to the deaf-blind community in Washington D.C.
- UK, For people within the United Kingdom who suffer hearing loss,
deafness or deafblindness, This site gives info about network and organisations
working within the local community to provide a range of services, advice
Denmark Institution for the
Deafblind, in the County of Northern Jutland in Denmark holds a nationwide
responsibility for persons who are born deafblind. The Institution frames
the lives of 31 youngsters, adults and elderly persons who, due to the
Nordic definition of deafblindness, are diagnosed with congenital deafblindness.
In addition to this the Institution employs around 90 persons who all go
through the in-service training provided for their specialization. Moreover
the Institution is a place where family members and relatives have a share
in the culture of the institution. The Institution for the Deafblind is
the largest institution for people who are congenitally deafblind in the
Nordic countries, and our intention is that it continues to have a leading
position in the services offered to deafblind people.
This is a link
to the English language version of the Site.
Division of Services for Persons who are Deaf or Hard of Hearing (including
Deafblind) Services include information and referral, interpreter resources
and guidelines, in-service training, technical assistance, advocacy, and
other programs for people who are deaf, hard of hearing or deafblind.
Deaf-Blind Project, was developed by DVR in 1993 to create access to
employment opportunities for persons living in Wisconsin who are deaf-blind.
Project staff work with consumers and families to determine their employment
and living needs and to create or assist in accessing services to address
those needs. The Project provides outreach services, consultation, assistance,
information, and training to education professionals, public and private
providers, families, and persons who are deaf-blind throughout the state.
European Deafblind Network
EDbN, is an organisation of representatives of National organisations
of Deafblind people, Family members of Deafblind people and Professionals
organisations in Europe.
Foundation, They provide counseling, mental health services, advocacy,
day habilitation, and support programs to individuals, couples and families,
during their lifespan, with special emphasis on the abused, the deaf, the
deaf-blind, the developmentally disabled, and senior citizens.
Group for CHARGE Children. The Family Support Group may not have all
the answers but is there to share information and experiences, share the
pain and the sorrow, share the joy and the excitement of achievement and
to assure parents always that they are not alone. Having a CHARGE child
can be hard work at times. Like most handicapped children, particularly
those with sensory impairment, behaviour problems can arise. However, the
CHARGE child is a special child - loving and giving, brave and determined.
I like this site very much it has very good information and well worth
Outreach Project for Individuals with Deaf-Blindness, is funded through
the United States Department of Education Office of Special Education and
Rehabilitative Services. The Project is designed to build the capacity
of the local school districts to create solutions to educational challenges
often associated with students who experience both vision and hearing impairments.
Brown College, Community Services, Intervenor for Deaf-Blind Persons.
Intervenors act as the eyes and ears for people who are both deaf and blind.
Students will learn to help people with this dual disability to communicate
and become more independent and assist them with the activities of daily
living. This program, the first and largest in the world, was developed
in partnership with a number of service providers and deaf-blind consumer
Lakes Area Regional Centre for Deafblind Education, (GLARCDBE), is
a federally funded project awarded to the University of Dayton that serves
the states of Ohio and Wisconsin. Within these states, services are provided
for individuals, birth to 21 years with dual-sensory impairments. The project
provides technical assistance to families, educational personnel, and other
service providers through training efforts and the dissemination of information
on innovative approaches to educating children and youth with dual-sensory
Keller Archives, In 1932, Helen Keller and her teacher, Anne Sullivan
Macy, gave "AFB" a valuable collection of letters, photographs, diplomas,
memento's, medals for the purpose of establishing a modest museum or exhibit,
This site has some of the articles.
The Helen Keller Eye Research
Foundation. Based on the legacy of Helen Keller and her request "help
me to hasten the day when there shall be no blindness," the Helen Keller
Eye Research Foundation strives to prevent blindness by advancing vision
research and education. The Foundation aspires to be a leader in integrating
vision research with the greater biomedical research community, by creating
and coordinating a peer-reviewed, worldwide network of investigators and
Keller National Center for Youths and Adults, Who Are Deaf-Blind, (HKNC)
is a national program, with headquarters in New York, which provides diagnostic
evaluation, short-term comprehensive rehabilitation and personal adjustment
training, work experience, and placement to youths and adults who are deaf-blind.
HKNC's role is to ensure that these youths and adults receive the skills,
training, and support necessary to live and work in the community of their
Keller, Radical, What they never taught us about this American heroine.
The Federal Bureau of Investigation kept a file on her. She was a feminist,
an early supporter of the NAACP, and a critic of the House Un-American
Activities Committee. Her name? Helen Keller. The inspiring story of how
Keller, blind and deaf from the age of 18 months, learned to cope with
her disabilities is widely known, thanks largely to the Academy Award-winning
movie The Miracle Worker, which crystallized her image as saintly superhero.
But what about the other side of this revered icon?
The Hilton/Perkins Program provides consultation, technical assistance
and training for the development of programs and services to children who
are deaf-blind, or multi-handicapped blind. Assistance is available to
programs serving infants, toddlers and school-aged children in the United
States and in developing countries. Assistance and funding is provided
to parent organizations, and to universities that offer a preservice training
program in deaf-blindness. The Hilton/Perkins program gathers data, disseminates
information, and develops curriculum and materials for students, parents
and school personnel.
Deafblind Services Project, This is a state-wide service authorized
under the Individuals with Disabilities Education Act It is administered
by the Blumberg Centre for Interdisciplinary Studies in Special Education
at Indiana State University. The Project's goal is to improve the quality
of educational services available to Indiana's infants, toddlers, children,
and youth with deafblindness.
Refsum's Disease, John and Mary are the proud parents of Ian a little
boy who is diagnosed with Infantile Refsum's Disease. They will explain
this condition to you on their web page, this is a very nice page with
plenty of information about this condition, they have links to excellent
resources about this disorder. They are very friendly people and this comes
across on their web page.
Resources in Audiology, This is an excellent resource for information
about Audiology, it contains a database of excellent information for deaf
and hard of hearing people and of course information about Deafblindness
as well, it also contains a remarkable list of links to Deafness related
sites. This site is highly recommended by me. But sadly the site is a framed
one and that was a great pity. But certainly worth a try if you are interested.
for Deafblind Persons Program. This Program will prepare Intervenors
to work as the "eyes" and "ears" for students who have the dual-sensory
disability of deafblindness. This is a Canadian site.
Project for Deaf-Blind Services, provides technical assistance through
training efforts and the dissemination of information on innovative and
best practices for purposes of educating infants, toddlers, children and
youth who are deaf-blind, birth through 21.
Katlyn's Hope, Inc.
is a non-profit organization established to assist in the education of
deaf-blind children from around the world. This web site is intended to
inform you about there organization and the services they offer. Of particular
interest to many people are the materials dealing with fundraising and
financial assistance for families with deaf-blind children.
National Deafblind and
Rubella Association, SENSE is fighting for the rights of deafblind
people. Founded as a parents' self-help group in 1955, Sense now
serves people who were born deafblind or acquired deafblindness later in
life. Families remain at Sense's core Sense brings together the work of
doctors, teachers, therapists, social workers and other professionals,
each looking at a different aspect of a deafblind person's life. Working
in partnership, Sense offers integrated services to meet the range of needs
of deafblind people and their families.
in the SENSE site there is a very good Article, by Mary Guest, about
National Technical Assistance Consortium for Children and Young Adults
Who Are Deaf-Blind. The primary mission of NTAC is to assist states in
improving the quality of services forindividuals (birth to age 28) who
are deaf-blind and to increase the numbers of children, young adults, their
families, and their service providers who will benefit from these services.
NTAC will also work with agencies and families within states through the
provision of technical assistance to facilitate long-range planning and
development of collaborative partnerships among families, service providers,
and agencies at the local, state, and regional levels use effective practices
and current research findings to enhance training opportunities for families
and service providers to increase awareness, knowledge, and skills in meeting
the unique needs of children and young adults who are deaf-blind, assist
parents and family members in advocating for and participating in effective
service delivery systems for the family member who is deaf-blind.
The one stop shopping for Best Neurofibromatosis information on the Web,
Neurofibromatosis is a genetic disorder of the nervous system that sometimes
causes deafness, blindness, or both. You will not find a website that is
better than this one for information about Neurofibromatosis, This is the
most comprehensive website that there is about this disorder.
North Carolina Deafblind
Associates (NCDBA), There mission is to seek new ways to provide emotional
support and improve the quality of life for Deafblind people, from cradle
to grave. We will explore all possible ideas, means, and technologies to
maximize their potential and achievement in their communication, mobility,
independent living, and place of employment and social life. NCDBA will,
as always, continue to help the deafblind persons be informed, empowered
and supported their prosperity of life. No stones will be ever left unturn,
as we pursue our goals in this competitive world.
of the Deafblind, A very interesting site, they also have English language
text on their pages, the site also has lots of information and links to
other Deafblind Associations and organizations throughout the world. An
ON DEAF-BLINDNESS by Barbara Miles, Barbara is a communication specialist/
consultant and teacher, experienced with all ages and levels of persons
who are disabled. She has taught regional, national and international seminars
on communication issue for children who are deaf-blind. Her articles have
been published in the Journal of Vision Impairments and Blindness, Deafblind
Education, and regional newsletters.
Peer Support for Students
who are Deafblind. Craig MacLean would like to announce a great web
site for students who are Deafblind who are attending BC colleges and universities.
This site has a lot of great information that can be helpful for Deafblind
students, intervenors, interpreters, coordinators, schools and other service
providers. So go to the site and discover a wealth of information for students
who are Deaf-Blind in colleges & universities in BC, Canada. This site
is a must for all Deafblind students. Craig has made a great web site.
PIE MEANS COMMUNICATION,
The Mission of Professional Interpreter Exchange, Our mission is to be
the premier interpreting agency to meet the needs of the full scope of
the deaf, deaf-blind and hard of hearing population, including public and
private organizations, and the hearing people who interact with them.
Sensory Impaired, Deafblind children programs on Irene's Home Page.
Irene Salomatina, Has worked with sensory impaired children for over Ten
years, They are mostly deafblind and deaf children. She is also a researcher
in the Institute of Special Education in Moscow, Russia. This is an excellent
site, Irene has I believe most if not all of the Deafblind manual alphabet's
from all over the world. The site is very graphical as the manual alphabet's
are shown as graphics their are no text descriptions of them for us to
read. But for people interested in Deafblind manual alphabet's its highly
Refuge, by Lauren Cooper. This is an excellent page by Lauren, she
has very interesting links and also information about her own condition
and how she has overcome them with great strength and determination. Lauren
is like myself Deafblind and its great to know that their is another Deafblind
person in the United Kingdom that also has created a web page and an excellent
one at that. I recommend this page very highly.
in aid of Deaf People, (RAD) is a registered charity which was founded
in 1841. Today RAD strives to meet the individual needs of Deaf children
and adults and deafblind people through the provision of services and the
use of RAD Centres for Deaf People. The head office is based in Colchester
and RAD has four regional teams based in Essex, London, Surrey and Kent.
Royal National Institute
for Deaf People, (RNID) is the largest voluntary organisation in the
UK representing deaf, deafened, hard of hearing and deafblind people.
Their vision is for deaf people to exercise their right to full citizenship
and to enjoy equal opportunities. RNID do this by increasing awareness
and understanding of deafness and deaf people and campaigning to remove
prejudice and discrimination by raising issues and promoting debate in
the press, media and in Parliament.
Patrick's Deaf and Deaf-Blind Ministry, Every Sunday at 10.00 a.m.
The mass St. Patrick is interpreted for the Deaf. They have 2-3 interpreters
each week, one in the sanctuary and the others interpreting for Deafblind
members of the parish. St Patrick's is in Seattle, USA.
Public Library - Deaf, Deaf-Blind, and Hard of Hearing Services, services
and programs to assist and interest deaf, deaf-blind, and hard of hearing
users, their friends, families, and co-workers.
Scotland, is part of the UK National Deafblind and
Rubella Association and is registered as a company with charitable purposes
in its own right in Scotland.
SignOn!, SignOn is
a group shared practice of RID-certified sign language interpreters providing
interpretation and communication access consultation for Deaf, Deaf-Blind,
late-deafened, hard of hearing people, and hearing people, to the Puget
Works, Where can individuals with disabilities acquire vocational skills
and gain hands-on experience necessary for employment? Signature Works
in Hazlehurst, Mississippi. Signature Works is one of America's largest
employer of people who are blind, offers on-site vocational training for
people with disabilities, especially blind and deaf-blind persons, in order
to help them maximize their capabilities for competitive employment and
achieve a higher level of personal independence. Or so they Say.
Helen Keller World Conference in Colombia, 1997 - Rights and services
for deafblind people in accordance with the Standard Rules of the United
Nations was the title of the Sixth Helen Keller World Conference, held
in Paipa, Colombia, from September 13 to 19, 1997. The countries were represented
by 60 deafblind participants, interpreters and professionals, in total
Usher’s Syndrome presented by Hearing Alliance of America, Inc.
Language Concepts to Multihandicapped Deaf Students, Teachers and parents
of deaf Multihandicapped children struggle with the frustration of achieving
meaningful communication. The first step to communication training is assessment
by the parents as part of the Educational Team. Parents need to work cooperatively
to develop a Team, which includes the parents and teacher, speech/language
pathologist, physical therapist, occupational therapist, teacher's assistant,
audiologist, or nurse. Together the Team assesses the child's strengths
and challenges in the six domains of Communication, Fine Motor, Gross Motor,
Activities of Daily Living, Social and Academic Skills. Dr. Jan VanDijk
of the Netherlands developed a curriculum approach for designing programs
for DeafBlind Multihandicapped children. Its focus is on teaching communication
through movement. VanDijk's approach provides insight into how to build
upon the child's existing methods of communicating using body movements,
signals, gestures, signs, and speech.
Texas School for the Blind
and Visually Impaired, TSBVI Outreach serves as a resource for families
of children with visual impairments including deafblindness, and the local
service providers who serve them. Technical assistance provided by TSBVI
Outreach is designed to meet the unique needs of sensory impaired children,
birth through 21 years of age. Outreach services are available statewide,
and are provided in coordination with related agencies and service providers.
This is a remarkable site full of information about Deafblindness, and
Resources for DB people. I recommend this site very highly I have
spent many hours going through TSBVI site and I honestly think you will
also find it very interesting. This is one that is well worth visiting.
Syndrome and Deaf-Blind Services, Ilene Miner, Joseph Cioffi, have
years of experience in direct service and consultation on issues related
to Usher Syndrome. Both are fluent in American Sign Language. This site
has excellent information and great resources within its pages, it is certainly
well worth visiting as Ilene and Joseph certainly know what they are talking
about and that is very obvious on their pages.
Syndrome by Deafblind UK Scotland, This page gives informative information
about usher syndrome and the people who live with this condition, it does
it in a very friendly way so that the reader can take in the information
in a relaxed way. There is great information here, they have an article
from a person who has the condition themselve. This page is certainly well
worth visiting, you won't be disappointed with the information here.
Videnscentret for Døvblindblevne,
(Information Center for Acquired Deafblindness) they are a Center financed
by the government and there purpose is to provide information about people
with acquired deafblindness.
World Federation of The DeafBlind,
This organization shall be a nonprofit, beneficial society of national
organizations of deafblind persons, of deafblind individuals, and of other
concerned individuals, organized for the purpose of advancing the economic,
educational and social welfare of deafblind persons, and improving the
morale among deafblind individuals throughout the world. I hope that the
WFDB will become a Great organization for deafblind people. I believe that
is about time that we the deafblind should start taken control of our own
future. So to read the start of organizations that are run and controlled
by deafblind people is just great for me.
World Conference of Deafblind International (DbI), July 20 to 25, 1999.
The conference will be held at Centro Escolar Turístico e Hoteleiro
do Estoril. In addition to professionals and deafblind people, we
encourage families to participate in the conference. A family camp will
be held to accommodate the needs of the families of deafblind children.
A-Z toDeafblindness http://www.deafblind.com