Mailing
List's And Newsletters For Deafblind People.
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CMV list- Support for families involved with Cytomegalovirus,
The purpose of the CMV list is to create a common ground - for parents
and caregivers of children with congenital CMV, their caretakers, therapists,
doctors and nurses who work with children, those with CMV, and those researching
ways to conquer CMV. CMV (Cytomegalovirus) is a herpes type virus that
affects young and old alike. CMV's complications range from unnoticed to
devastating. This list is also a forum to learn from each other, share
our frustrations and rejoice in our triumphs. This list will be a place
to discuss any and all of the complications of CMV...To list a few: intracranial
calcification, Cerebral Palsy, seizure disorder, deaf, visually impaired,
profound delays and MR, microcephallic, mal-absorption difficulties, feeding
difficulties, CMV retinitis. There are many other handicaps associated
to CMV, all of which are open for discussion. Here we can discuss children's
accomplishments and defeats, knowing that the audience includes others
who know what we are going through. We can also get some idea of how others
address specific problems/concerns with feeding, learning, schools, medical
resources, techniques and equipment, as well as describing the problems
to friends and family or just coping.
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To subscribe to the
CMV list send e-mail to, request@challenge.net. And in the BODY of
the email type subscribe CMV your email address OR, digest CMV your email
address
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The list Owner is Sue
Robertson, and e-mail is peacock351@aol.com.
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DB_Intervenor mailing list, The DB_Intervenor list will be
specifically for the needs of Deafblind children. And will be open to parents,
Intervenors, and professionals. It will take on an open iscussion format,
and will also have a question/answer format where people working in the
field of deafblindness will be available to respond to specific questions.
The title is DB_Intervenor. Remember parents are a deafblind child's first
intervenor.
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To subscribe
to DB_Intervenor Send an e-mail to, DB_Intervenor@listserv.sd38.bc.ca.
Type " subscribe " into the subject heading, and leave the body of the
message blank.
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The Deafblnd Mailing List The DEAFBLND list (notice there
is no "i" in the word of DEAFBLND) A newsgroup for people who share and
support each other. who are both visually and hearing impaired -- DeafBlind,
Ushers, parents, siblings, spouses, friends and other professional who
want to learn from DEAFBLND list. I am a member of the Deafblind mailing
list, and you will never meet so many nice people on a mailing list and
all of them are very willing to help anyone who needs help, or just answering
questions about Deafblindness.
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To subscribe to Deafblnd
send message to: listserv@tr.wou.edu. SUBJECT: subscribe. And in the
message body subscribe deafblnd (your first and last name) Then, just send
it and follow the instructions for confirmation.
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For the FAQ, send the
command GET DEAFBLND.FAQ to LISTSERV@TR.WOU.EDU,
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For help, about the
list contact the owner Randy Klumph klumphr@fstr.wou.edu. All of the
e-mail's which are sent to Deafblind mailing list are archive on the official
WWW site by Randy Klumph. Randy does some great work here by managing to
keep this site in order.
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The
official WWW archives of the Deafblind Mailing List, By Randy Klumph.
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The Retitinits Pigmentosa, RPLIST newsgroup. Rplist is for
discussing retinitis pigmentosa inparticular and degenerative visual impairmentsin
general.
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To subscribe
to RPLIST send a message to, listserv@maelstrom.stjohns.edu. SUBJECT:
subscribe. And in the message body subscribe rplist (your first and last
name) Then, just send and follow the instructions for confirmation.RP Mailing
List, The RPList is an Internet Mailing List with many subscribers completely
devoted to the discussion of Retinitis Pigmentosa
free.uk.deafblind
This is a Newsgroup that I have started up myself to try
and bring Deafblind people together on the net, So That we can talk about
troubles that we may be having with our computer equipment or about what
ever we wish to talk about. It is also a place where the familys
of a deafblind person can meet and find ways around troubles that they
may be having with there Deafblind child.
So Please come a long and join us on the free.uk.deafblind
newsgroup You will be made very welcome.
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About US
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c/o Vision Screening Project,
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5801 Southwood Drive,
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Bloomington MN 55437
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(Voice/TTY) (612) 831-5522
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(FAX) (612) 831-0381
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A newsletter by and for people with Usher syndrome Type 2.
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Deafblind American Magazine. For more information about this
magazine please contact the editor Harry Anderson hca@AUG.COM.
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Australian
DeafBlind Council, (ADBC), Publish a magazine called Beacon, it is
circulated four times a year for the members of the Australian DeafBlind
Council (ADBC). It is available separately for a subscription of $20, 20
Australian dollars per year.
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Colorado Services to Children with Deafblindness is a project
funded through a grant from the United States Department of Education.
The major objective of the project is to assist programs, professionals,
and parents in providing appropriate learning and living opportunities
for individuals with deafblindness between the ages of birth to 21. The
mission of the grant project is to provide technical assistance, inservice
training, assistance in identification, program consultation, workshops,
lending library access, and newsletters to families, educators, and others
involved with individuals with deafblindness. These services are provided
at no cost to families and service providers of children who are deafblind
(having both vision and hearing impairment).
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THE COMMUNICATOR is a newsletter published by The Canadian
National Institute for the Blind Ontario Division Deafblind Services for
associates, clients, families, friends, partners, staff, and volunteers.
Produced in English and six formats including contracted, uncontracted
braille; regular, large, extra-large print and mailed the FOURTH Wednesday
of each month except December. The Editor of The Communicator is Kerry
G. Wadman, And Mr Wadman E-mail address is, RTRDCKW@OISE.ON.CA.
To find out more about the newsletter E-mail ORTCKW@OISE.UTORONTO.CA.
or try, E-mail, DEAFBLND@east.cnib.ca.I
receive this publication myself and it is honestly an excellent resource.
I recommend this very highly.
The CNSDB Newsletter is published quarterly by the Canadian
National Society of the Deaf-Blind. The Newsletter is available in
English and French, LARGE PRINT and Braille, Grade I and Grade II.
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Deafblind Focus.
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Indiana Deafblind Services Project.
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Blumberg Center for Inderdisciplinary Studies in Special
Education,
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School of Education 502,
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Indiana State University,
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Terre Haute,
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IN 47809.
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The Deafblind Focus newsletter provides practical information
for parents and professionals. Although the primary focus is on Indiana
services and projects this newsletter also provides information about students,
resources, and interventions.
DbI Review is the print magazine of Deafblind International.
It appears twice yearly, the two editions are dated January-June and July-December.
All members of DbI recieve the magazine.
The Journal, DbI Review, is available in English, Spanish
and on disk.. Development of materials in other languages is encouraged.
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Deaf-Blind Multihandicapped Association of Texas (DBMAT),
publishes a magazine called In Touch, Dues are five dollars per individual
per year to become a member of DBMAT and receive there newsletter. To obtain
more information about the organization, get in touch with them at DBMAT,
815 High School Drive, Seagoville, TX 75159-1737 or by phone (voice &
fax) at (972) 287-1904.
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Deaf-Blind Service Center Bulletin.
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Deaf-Blind Service Center,
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2366 Eastlake Avenue East,
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Suite 312
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Seattle,
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Washington 98102
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Tel: 206-323-9178
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Deaf-Blind Perspectives is a free publication, published
three times a year by the Teaching Research Division of Western Oregon
University. DB-LINK and NTAC contribute staff and resources for content,
editing, and publication. This is an excellent publication with informative
information about Deafblindness.
Since 1995 EDbN has published a newsletter 1-2 times a year
in print, disk and internet versions Since April 1999 EDbN
Clipboard is published monthly by e-mail and fax.
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Hot-Line to Deaf-Blind
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American Action Fund for Blind Children and Adults,
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18440 Oxnard Street,
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Tarzana, California 91356
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818-343-2022
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Publication includes summary of current news written especially
for deaf-blind persons. It is taken directly from wire services and
straight news sources and is the only Braille news publication which does
not include editorials. Available free upon request.
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Indiana Deaf-Blind Services Project.
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Blumberg Center,
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SOE,
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Room 502,
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Indiana State University,
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Terre Haute,
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IN 47809,
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Tel: (812) 237-2830.
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This newsletter provides information from the Indiana Deaf-Blind
Project. Articles have a practical focus and good reference lists for educators.
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International Newsletter for Deafblind People.
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Editor Lex Grandia
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Prinsessegade 28
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DK 9400 Noerresundby
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Denmark
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Tel: +45 98 19 20 99
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Fax: +45 98 19 20 57
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Mob.Tel: +45 20 11 51 89
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E-mail: Lex.Grandia@TP44.frukt.org.
This newsletter is funded by WFDB, with economic support
from FSDB, the Swedish Deafblind Organisation and SHIA (Swedish Organisation
of Disabled Persons International Aid Association - Solidarity, Humanity,
International Aid) .
This Newsletter can be obtained in Braille, Large Print,
on Disk and on the Internet.
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To obtain the newsletter on the Internet from the server
of the Swedish Deafblind Organisation FSDB, send
an e-mail to listserv@frukt.org, and in the body of the e-mail you
have to write subscribe intndb-l
Aims of this International Newsletter:
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To encourage contributions.
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To provide a publication which includes: creative expression
by deafblind people worldwide.
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Short stories, essays, poems, achievements articles etc;
to inform on progress in education, habilitation, rehabilitation and technological
advancements;
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To contain interviews with the profiles of deafblind people
and their organisations; to create awareness of international activities
and publish reports;
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To be aware of research projects that will be of benefit
to deafblind people;
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To publish descriptions of communication, manuals equipment,
housing projects etc;
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To advertise new publications relating to deafblindness,
and periodicals with and for deafblind people, in braille and large print;
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To present illustrations/photographs relating to the content
of the Newsletter whenever possible.
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Manual for Parents of Deaf-Blind Children
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Sign Language Associates, Incorporated,
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8630 Fenton Street,
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Suite 406
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Silver Spring,
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Maryland 20910
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Tel: 301-588-7591
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Fax: 301-588-3021.
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Pennsylvania
Deafblind Project, Have an Information Update Magazine. It's an excellent
magazine to read with lots of good helpful information for people like
ourselves.
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Publications for teachers of deaf-blind.
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Teaching Research Publications
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345 North Monmouth Avenue
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Monmouth,
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Oregon 97361
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Tel: 503-838-8391.
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Rainbow is the official magazine of Deafblind UK (formerly
the National Deafblind League). The Rainbow is available in Braille, Moon,
Large Print,Tape and Disk from Deafblind UK. All enquiries should be addressed
to Deafblind UK. 100 Bridge Street, Peterborough, Cambridgeshire, England.
PE1 1DY. Tel. (Voice or Minicom) 01733-358100 Tel. (Qwertyphone) 01733-358858,
Fax 01733-358356. For information E-mail, info@deafblind.org.uk.
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And also Deafblind UK Scottish office, Drena O'Malley, Development
Manager, 21 Alexandra Avenue, Lenzie, G66 5BG. Telephone/Minicom 0141-777
6111, Fax 0141-775 3311, And for information about Deafblind UK Scottish
office, send E-mail to, info@deafblindscotland.org.uk.
There Web Site is at http://www.deafblindscotland.org.uk/.
Deafblind UK aims to improve the quality of life for deafblind people.
As well as the staff based at the head office, there are regional liaison
officers and divisional secretaries throughout the UK. If you would like
more information about Deafblind UK and its work, or details of your nearest
worker or club, please contact Deafblind UK. The Editor
of the Rainbow magazine is Mr Michael Gerwat and Michaels E-mail address
is michael@grate.demon.co.uk.
The Rainbow is free to deafblind members. It is available to associate
members and anyone else at an annual subscription of £15 Pounds.
Donations towards the cost of production are always welcome and can be
sent to Deafblind UK.
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RP Messenger, is a newsletter produced by Texas Association
of Retinitis Pigmentosa (TARP), the publication usually has many articles
about Usher Syndrome. For more information please contact The Managing
Editor, Dorothy Stiefel at dstiefel@mail.interconnect.net.
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Sense, Talking
Sense £10.00 annually. Sense's quarterly magazine is essential reading
for anyone involved with deafblindness - deafblind people, their families,
professionals and policy makers. You can request a subscription form
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by sending a E-mail letter to them, which is enquiries@sense.org.uk.
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Another publication from Sense is called, Deafblind Education,
published twice a year by the International Association for the Education
of Deafblind People.covers developments world wide. Subscriptions £6
for one year, £12 for two years, £17 for three years and £22
for four years may be sent to: Mary Shepherd, IAEDB Secretary, Sense, 311
Gray's Inn Road, London WC1X 8PT. Tel. 071-278 1005. Again there E-mail
address is enquiries@sense.org.uk.
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Taubblind
Magazine is published, in German by the German Association of Parents
of deafblind children(Fordergemeinschaft fur Taubblinde eV). It provides
help for families who may have a Deafblind family member. This is an excellent
magazine. For more information about Taubblind send E-mail to taubblind@post.de.
And the magazines producer will advise you on how to subscribe to Taubblind.
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TASH, The Association for Persons with Severe Handicaps,
7010 Roosevelt Highway, Northeast; Seattle, Washington 98115; 206-523-8446.
Provides free list of publications available from various regional centers
for deafblind around the USA.
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Texas Deafblind Outreach,
Texas School for the Blind & Visually Impaired, publishes a news
letter Called, SEE / HEAR and is published quarterly: January, April, July,
and October. If you as a family member, professional or representative
of an organization or agency wish to contribute to the newsletter please
contact Kate Moss at (512) 206-9224. You may also mail articles or information
to her at the following address: TSBVI Outreach, 1100 West 45th Street,
Austin, TX 78756. The audio version of SEE/HEAR is provided by Recordings
for the Blind and Dyslexic, Austin, TX. Kate Moss is the Family Training
Coordinator and Editor of SEE/HEAR, Funding for the Texas Deafblind Project
is provided in part by a Federal 34 CFR 307.11 Grant. Funds are administered
through the Texas Education Agency, Division of Special Education.
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The Editor Kate Moss
E-mail address is, moss_k@tsb1.tsbvi.edu. This is an excellent publication,
and I receive it myself and it is certainly well worth reading.
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US Families A magazine for Usher people and their families
published by Sense in the UK. This is distributed in Australia by (ADBC)
Annual subscription is $A20. 20 Australian dollars per year For Information
about the US Families magazine E-mail dba@internex.net.au.
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Usher Family Support
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c/o Helen Anderson,
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4918 42nd Avenue South,
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Minneapolis MN 55417
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A newsletter by and for families of people with any type
of Usher syndrome.
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Deafblind Cyber Chat is a Web Page owned and managed by a
Deafblind person.
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Deafblind Cyber
Chat is at http://home.earthlink.net/~deafy/. I honestly cannot say
very much about this web page, I have tried to visit the site but I find
it is virtually impossible to navigate around this page, which is surprisingly
unusual because it was made by a Deafblind person. I don't know why he/she
didn't make it accessible to all. But such is life. haha.
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Teaching Research has made available, a Conference/Chat room
for public use. Randy Klumph has created a conference area called deaf-blind,
as well as a deaf-blind chat room. The conference area stores messages
by thread (for 10 days) much like a newsgroup. When connecting to the URL
below, login as a new user. IMPORTANT -- you must have your browser set
to allow "Cookies." ALSO IMPORTANT -- Unless you are using the latest browser
technology, select the "No Frames" option at the bottom of the personal
information page. Even if your browser can handle frames, there seems to
be a bug in the software that has difficulty with frames in some browsers
- Internet Explorer 3x in particular. Both Netscape Communicator and IE4.0
handle the frames OK. Your browser must be java enabeled to use the Chat
feature.
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Conference/Chat
room is at: http://www.tr.wou.edu/webboard/$webb.exe/~2/login.
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Or from the Teaching Research
home page http://www.tr.wou.edu.
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E-mail Randy Klumph at,
klumphr@wou.edu.
A-Z to Deafblindness http://www.deafblind.com